Friday, April 17, 2009

Do you know anything about AML/MDS?


AML = Acute Myeloid Leukemia
MDS = Myelodysplastic syndrome

17 year old Regine was diagnosed with AML/MDS in August 2008. She has had a bone marrow transplant but learned last week that she has relapsed. The doctors in Norway have now given her up and can only offer her life-extending chem0therapy. However, there may be options for a second transplant or other treatment abroad. Some patients with Regine's diagnosis and history have survived and fought the cancer through a second transplant. However, they will not do this in Norway so Regine, her family and thousands of people following her amazing blog are now looking for other options.

Do you know anything about AML/MDS? A good hospital, someone with a similar story, a doctor or expert? Please let me know through email or leave a comment here, or post a recommendation directly on Regine's blog.

A account has also been opened to collect money that will allow Regine to pursue treatment abroad. The account number is 3939.01.61107 (Sparebanken 1 Nordvest). Please make a donation.

Thank you -- hopefully we can make a difference to Regine!


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